Since 2006, the Saving tiny Hearts Society (StHS) has been working to fulfill its mission of raising seed money for grossly under-funded, lifesaving grass roots research of congenital heart defects (CHD's). This seed funding acts as a bridge for this research to millions of dollars of extramural funding from the National Institute of Health (NIH) or other outside funding. To date the StHS has raised over a million dollars and funded twelve (12) research projects.
The inspiration for starting the Saving tiny Hearts Society… Our story (as told by Francie Paul, the Saving tiny Hearts Society’s Founder)…
On August 11, 2005 we had our first child, a beautiful baby boy named Joshua Bennett Paul. My pregnancy was “normal” and my doctors reported nothing “remarkable” about it. As it turned out there was nothing “normal” about my pregnancy and it was incredibly “remarkable”. Four hours after his birth, Joshua was rushed from the local hospital where he was born to Children’s Memorial Hospital, Chicago where he was quickly diagnosed with Severe Complex Congenital Heart Disease. (To read Joshua’s full story click here)
Like many parents in our position, we became very angry and once the dust settled we considered litigation as a course of action. After meeting with high-profile medical-malpractice attorneys in Chicago we decided that this route was clearly not for us. In the elevator on the way out of one of the attorney’s offices we called Brian’s (my husband) corporate attorney to find out how to start a Public Charity. We felt channeling our energy into something positive instead of something negative (like litigation) would be much healthier and fulfilling way for us focus our efforts.
On May 6, 2007 the United States Internal Revenue Service officially recognized the Saving tiny Hearts Society as a tax exempt 501(c)(3) organization. (The process to obtain this classification took a year to obtain. Our fundraising efforts began when we applied to the federal government). We are proud to say that we have never had a paid employee and our organization and board of directors’ has always functioned with only volunteers who share the passion for helping to extend the lives of these children born with congenital heart defects.
Your support of the Saving tiny Hearts Society will make a difference, change the future of medicine and will help to save the lives of all of these children. In honor of those children, I wholeheartedly thank you.